Friday, April 9, 2010

40 Years Living with a Time Bomb

I was just diagnosed with HCV stage 3. At this time, that's all I know. I have known that the disease was with me for 40 years. It’s been like living with a little time bomb in my body, not knowing when it was going to go off. Well this week, it went off. I finally went back to my liver doctor and all it took was one blood test for him to put me on the fast track. The biopsy was next, and I got the call 3 days ago. Stage 3 and that's all I know. This is something I wrote, describing the time line of how I got here:
ok, here is the 2 minute elevator ride explanation for me:

When I was 17 I did what 17 year old kids did ..It was 1969...fill in the blanks... i went to Woodstock too.
Shortly after, I woke up one day and I turned a lovely shade of yellow jaundice. Hep non a/b in 1990 I wanted some life insurance, so they did a blood test; elevated enzymes. The doctor said they were slightly elevated, no biopsy needed. I didn't get the life insurance.
5 years ago I had a physical and blood test came back with really elevated enzymes...the DR said we need to do more blood work. Nope, don't want to do it, so I didn't. (Denial)

Last year I got the shingles (ow) more blood work, and the doctor said you really need to see a liver dude.

In March I finally saw the same DR that I saw in 1992...blood tests, biopsy, and phone call....treatment immediately. Not good...ground floor, 40 years later, and now I have to get off.

I am new at this, and I don't know what is going to happen and I am really worried. I’m thinking that if I did something sooner that maybe I wouldn't be in this mess today; but you can't turn back the clock. What has helped me for the last 3 days is the support and help I get from people I don't even know. Taking the time to answer my many dumb questions. They are a life line in a sea of doom. I’m really worried, mostly because I don't know what's happening. Thank you for being one of those people that helps someone like me.

Thanks so much for who you are Uncle Dudeness.............

Uncle Dudeness - Biopsy Results

I just got the biopsy results from my DR today, and he said it was worse than he thought. Although he is a liver specialist, he is sending me to another liver specialist at Yale. today, I found myself just staring down with no thought in my head. Blank. I feel lost, I don't know what to expect. I posted the results at Janis. I hope Step will look at it soon, cuz i am clueless.

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